An International Collaborative Initiative to Establish a Quality-of-Life Questionnaire for Children and Adolescents with Repair of Esophageal Atresia in 14 Countries

CHILDREN-BASEL. 2024;11(3):.

Growth hormone treatment in children with short stature: impact of the diagnosis on parents
Witt S, Bloemeke J, Bullinger M, Dörr H, Silva N, Quitmann J
J PEDIATR ENDOCR MET. 2024;37(4):326-335.

DySMA - an Instrument to Monitor Swallowing Function in Children with Spinal Muscular Atrophy ages 0 to 24 Months: Development, Consensus, and Pilot Testing
Zang J, Witt S, Johannsen J, Weiss D, Denecke J, Dumitrascu C, Nießen A, Quitmann J, Pflug C, Flügel T
J NEUROMUSCULAR DIS. 2024;11(2):473-483.

Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14 countries

FRONT PEDIATR. 2023;11:1253892.

Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): A prospective, controlled trial with a two-phase cohort design
Hebestreit H, Lapstich A, Brandstetter L, Krauth C, Deckert J, Haas K, Pfister L, Witt S, Schippers C, Dieris-Hirche J, Maisch T, Tüscher O, Bârlescu L, Berger A, Berneburg M, Britz V, Deibele A, Graeßner H, Gündel H, Heuft G, Lücke T, Mundlos C, Quitmann J, Rutsch F, Schubert K, Schulz J, Schweiger S, Zeidler C, Zeltner L, de Zwaan M
ECLINICALMEDICINE. 2023;65:.

Parent Perceptions of a Pretend Play Intervention for Their Children With Cancer
Höglund A, Witt S, Quitmann J, Frygner-Holm S
J NURS RES. 2023;31(1):e253.

Health-Related Quality of Life, Stress, Caregiving Burden and Special Needs of Parents Caring for a Short-Statured Child—Review and Recommendations for Future Research
Lackner L, Quitmann J, Kristensen K, Witt S
INT J ENV RES PUB HE. 2023;20(16):.

Caregiving burden and special needs of parents in the care of their short-statured children - a qualitative approach
Lackner L, Quitmann J, Witt S
FRONT ENDOCRINOL. 2023;14:1093983.

Lebensqualität von kleinwüchsigen Kindern und Jugendlichen und Wachstumshormontherapie
Quitmann J, Binder G, Witt S, Bullinger M, Blömeke J, Fricke-Otto S, Hauffa B, Kahrs S, Partsch C, Rohenkohl A, Dörr H
MONATSSCHR KINDERH. 2023 [Epub ahead of print].

Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs
Rautmann L, Witt S, Theiding C, Odenwald B, Nennstiel-Ratzel U, Dörr H, Quitmann J
INT J ENV RES PUB HE. 2023;20(5):.

Herausforderungen beim Übergang in die Elternrolle. Begleitung von werdenden Eltern mit dem Elternkurs "Sicherer Hafen"
Witt S, Brandi D, Kristensen K, Kollmeyer M, Quitmann J
Frühe Kindheit. 2023;66-71.

Bewegungsorientierte Förderung von Lebensqualität in der Kindertagesstätte
Witt S, Fiedler M, Madsen L, Quitmann J
Frühe Kindheit. 2023;2023(04):36-43.

Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung – erste Erkenntnisse aus der ZSE-DUO Studie
Witt S, Kristensen K, Blömeke J, Hebestreit H, Wocker M, Pfister L, Bullinger M, Tüscher O, Deckert J, Graessner H, Lapstich A, Zwaan M, Mundlos C, Quitmann J
PSYCHOTHER PSYCH MED. 2023;73(1):9-15.

Health-related quality of life and patient-reported outcome measurements in patients with cystinosis
Witt S, Kristensen K, Hohenfellner K, Quitmann J
JIMD reports. 2023;64(2):199-211.

Maßnahmen für einen optimalen Zugang von Kindern mit seltenen Erkrankungen und ihrer Familien zur psychosozialen Versorgung
Witt S, Kristensen K, Wiegand-Grefe S, Quitmann J
INNERE MED. 2023;64(5):494-499.

Effects of a Pretend Play Intervention on Health-Related Quality of Life in Children With Cancer: A Swedish-German Study
Witt S, Quitmann J, Höglund A, Russ S, Kaman A, Escherich G, Frygner-Holm S
J PEDIAT HEMAT ONC N. 2023;40(3):158-169.

Living with a rare disease - experiences and needs in pediatric patients and their parents
Witt S, Schuett K, Wiegand-Grefe S, Boettcher J, Quitmann J
ORPHANET J RARE DIS. 2023;18(1):242.

Factors of family impact in a Swedish-German cohort of children born with esophageal atresia
Dellenmark-Blom M, Abrahamsson K, Dingemann J, Witt S, Dingemann C, Jönsson L, Gatzinsky V, Bullinger M, Ure B, Chaplin J, Quitmann J
ORPHANET J RARE DIS. 2022;17(1):.

Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study
Hebestreit H, Zeidler C, Schippers C, de Zwaan M, Deckert J, Heuschmann P, Krauth C, Bullinger M, Berger A, Berneburg M, Brandstetter L, Deibele A, Dieris-Hirche J, Graessner H, Gündel H, Herpertz S, Heuft G, Lapstich A, Lücke T, Maisch T, Mundlos C, Petermann-Meyer A, Müller S, Ott S, Pfister L, Quitmann J, Romanos M, Rutsch F, Schaubert K, Schubert K, Schulz J, Schweiger S, Tüscher O, Ungethüm K, Wagner T, Haas K
ORPHANET J RARE DIS. 2022;17(1):.

The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content Validity
Li S, Dellenmark-Blom M, Zhao Y, Gu Y, Li S, Yang S, Quitmann J, Huang J
INT J ENV RES PUB HE. 2022;19(22):.

Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia
Rozensztrauch A, Śmigiel R, Patkowski D, Gerus S, Kłaniewska M, Quitmann J, Dellenmark-Blom M
INT J ENV RES PUB HE. 2022;19(13):.

Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism - A Scoping Review
Kristensen K, Quitmann J, Witt S
FRONT ENDOCRINOL. 2021;12:.

Feasibility, Reliability, and Validity of the Turkish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia
Soyer T, Arslan U, Ulukaya Durakbaşa Ç, Aydöner S, Boybeyi-Türer Ö, Quitmann J, Dingemann J, Dellenmark-Blom M
TURK J GASTROENTEROL. 2021;32(8):640-650.

Need for transition medicine in pediatric surgery - health related quality of life in adolescents and young adults with congenital malformations
Uecker M, Ure B, Quitmann J, Dingemann J
INNOV SURG SCI. 2021;6(4):151-160.

Patient-Reported Outcomes-The Value of Observational Assessments
Witt S, Bloemeke J, Bullinger M, Dingemann J, Dellenmark-Blom M, Quitmann J
EUR J PEDIATR SURG. 2021;31(5):454-455.

Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study
Witt S, Dellenmark-Blom M, Kuckuck S, Dingemann J, Abrahamsson K, Dingemann C, Chaplin J, Ure B, Bullinger M, Gatzinsky V, Jönsson L, Quitmann J
ORPHANET J RARE DIS. 2021;16(1):120.

Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal Atresia
Witt S, Dingemann J, Dellenmark-Blom M, Quitmann J
FRONT PEDIATR. 2021;9:.

Lebensqualität und psychische Gesundheit von Kindern mit Adrenogenitalem Syndrom
Witt S, Heiden J, Quitmann J
Gynäkologische Praxis. 2021;2021(47):472-484.

»Sicherer Hafen« – Modellprojekt zur Steigerung der Lebensqualität und Feinfühligkeit für werdende Eltern
Witt S, Kollmeyer M, Brandi D, Quitmann J
Päd Praxis. 2021;2021(95):332-343.

Lebensqualität und Geburtserleben von Müttern und ihren Partnern im Rahmen des Elternkurses »Sicherer Hafen Hamburg«
Witt S, Kristensen K, Brandi D, Kollmeyer M, Quitmann J
Gynäkologische Praxis. 2021;48(2):242-252.

Wann ist klein zu klein? Und was bedeutet das für die betroffenen Patientinnen/Patienten und ihre Angehörigen?
Witt S, Kristensen K, Quitmann J
GLANDULA. 2021;53(2/21):40-42.

Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany
Witt S, Kristensen K, Wiegand-Grefe S, Boettcher J, Bloemeke J, Wingartz C, Bullinger M, Quitmann J
ORPHANET J RARE DIS. 2021;16(1):.

Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric Surgeon
Bloemeke J, Witt S, Bullinger M, Dingemann J, Dellenmark-Blom M, Quitmann J
EUR J PEDIATR SURG. 2020;30(3):232-238.

Health-Related Quality of Life in Patients after Repair of Esophageal Atresia: A Review of Current Literature
Dellenmark-Blom M, Quitmann J, Dingemann C
EUR J PEDIATR SURG. 2020;30(3):239-250.

Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study
Dellenmark-Blom M, Quitmann J, Dingemann J, Witt S, Ure B, Bullinger M, Jönsson L, Gatzinsky V, Dingemann C
EUR J PEDIATR SURG. 2020;30(1):96-103.

Health-Related Quality of Life in Pediatric Surgical Patients and their Caretakers
Dingemann J, Dellenmark-Blom M, Quitmann J
EUR J PEDIATR SURG. 2020;2020(30):223-224.

Health-Related Quality of Life and Psychosocial Morbidity in Anorectal Malformation and Hirschsprung's Disease
Feng X, Lacher M, Quitmann J, Witt S, Witvliet M, Mayer S
EUR J PEDIATR SURG. 2020;30(3):279-286.

Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations-A Scoping Review
Witt S, Blömeke J, Bullinger M, Dingemann J, Quitmann J
EUR J PEDIATR SURG. 2020;30(3):225-231.

Lebensqualität und psychische Gesundheit von Kindern mit Adrenogenitalem Syndrom
Witt S, Heiden J, Quitmann J
Päd Praxis. 2020;93(03):385-397.

„Sicherer Hafen“ – Elternkurs zur Steigerung der elterlichen Lebensqualität und Feinfühligkeit für werdende Eltern
Witt S, Kollmeyer M, Brandi D, Quitmann J
gyne. 2020;2020(06):13-21.

Validation of the Greek version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire
Antonios Drosatou C, Vlachopapadopoulou E, Bullinger M, Quitmann J, Silva N, Salemi G, Pavlopoulou I, Michalacos S, Tsoumakas K
J PEDIATR ENDOCR MET. 2019;2019(3):215-224.

Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in a randomized open-label comparator trial in idiopathic short stature
Bloemeke J, Balacano Valdez R, Mauras N, Mericq V, Ross J, Permuy J, Quitmann J, Bullinger M
J PEDIATR ENDOCR MET. 2019;32(10):1089-1101.

Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment
Bloemeke J, Silva N, Bullinger M, Witt S, Dörr H, Quitmann J
HEALTH QUAL LIFE OUT. 2019;17(1):49.

Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia
Bloemeke J, Sommer R, Witt S, Bullinger M, Nordon C, Badia F, González F, Leiva-Gea A, Delgado Rufino F, Mayoral-Cleries F, Romero-Sanchiz P, Clamagirand Saiz V, Nogueira-Arjona R, Mohnike K, Quitmann J
QUAL LIFE RES. 2019;28(9):2553-2563.

Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)
Bloemeke J, Sommer R, Witt S, Dabs M, Badia F, Bullinger M, Quitmann J
DISABIL REHABIL. 2019;41(15):1815-1825.

The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia: a condition-specific approach
Dellenmark-Blom M, Chaplin J, Quitmann J, Jönsson L, Gatzinsky V, Dingemann J, Abrahamsson K
DIS ESOPHAGUS. 2019;32(7):.

Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish Cohort
Flieder S, Dellenmark-Blom M, Witt S, Dingemann C, Quitmann J, Jönsson L, Gatzinsky V, Chaplin J, Dammeier B, Bullinger M, Ure B, Abrahamsson K, Dingemann J
EUR J PEDIATR SURG. 2019;29(1):75-84.

Pretend Play as an Intervention for Children With Cancer: A Feasibility Study
Frygner-Holm S, Russ S, Quitmann J, Ring L, Zyga O, Hansson M, Ljungman G, Höglund A
J PEDIATR ONCOL NURS. 2019;37(1):65-75.

First-year predictors of health-related quality of life changes in short-statured children treated with human growth hormone
Quitmann J, Bloemeke J, Dörr H, Bullinger M, Witt S, Silva N
J ENDOCRINOL INVEST. 2019;42(9):1067-1076.

Quality of Life of Short-Statured Children Born Small for Gestational Age or Idiopathic Growth Hormone Deficiency Within 1 Year of Growth Hormone Treatment
Quitmann J, Bloemeke J, Silva N, Bullinger M, Witt S, Akkurt I, Dunstheimer D, Vogel C, Böttcher V, Kuhnle Krahl U, Bettendorf M, Schönau E, Fricke-Otto S, Keller A, Mohnike K, Dörr H
FRONT PEDIATR. 2019;7:164.

Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study
Witt S, Bloemeke J, Bullinger M, Dingemann J, Dellenmark-Blom M, Quitmann J
BMC PEDIATR. 2019;19(1):330.

Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study
Witt S, Dellenmark-Blom M, Flieder S, Dingemann J, Abrahamsson K, Jönsson L, Gatzinsky V, Chaplin J, Ure B, Dingemann C, Bullinger M, Sommer R, Quitmann J
CHILD CARE HLTH DEV. 2019;45(1):79-88.

Quality of life of children with achondroplasia and their parents - a German cross-sectional study
Witt S, Kolb B, Bloemeke J, Mohnike K, Bullinger M, Quitmann J
ORPHANET J RARE DIS. 2019;14(1):194.

Eine Diagnose überbringen? Warum gerade ich?
Witt S, Quitmann J
Deut Hebammen Z. 2019;71(10):30-35.

The Esophageal-atresia-Quality-of-life questionnaires: feasibility, validity and reliability in Sweden and Germany.
Dellenmark-Blom M, Dingemann J, Witt S, Quitmann J, Jönsson L, Gatzinsky V, Chaplin J, Bullinger-Naber M, Flieder S, Ure B, Dingemann C, Abrahamsson K
J PEDIATR GASTR NUTR. 2018;67(4):469-477.

Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress
Silva N, Bullinger M, Sommer R, Rohenkohl A, Witt S, Quitmann J
CLIN PSYCHOL PSYCHOT. 2018;25(1):e107-e118.

The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational age
Sommer R, Blömeke J, Bullinger M, Quitmann J
J ENDOCRINOL INVEST. 2018;41(10):1185-1191.

Adrenogenitales Syndrom (AGS) mit 21-Hydroxylase-Defekt bei Kleinkindern: Erste Ergebnisse einer Pilotstudie zur psychosozialen Situation der Eltern
Witt S, Blömeke J, Dörr H, Quitmann J
Päd Praxis. 2018;90(1):29-37.

Emotionsregulation, psychische Auffälligkeiten und Lebensqualität von Kindern mit endokrinem Kleinwuchs
Witt S, Bullinger M, Quitmann J
Päd Praxis. 2018;90(2):200-210.

Quality of Life in Parents of Children Born with Esophageal Atresia
Witt S, Dellenmark-Blom M, Dingemann J, Dingemann C, Ure B, Gomez B, Bullinger-Naber M, Quitmann J
EUR J PEDIATR SURG. 2018 [Epub ahead of print].

Exploring the potential of a pretend play intervention in young patients with leukemia
Witt S, Escherich G, Rutkowski S, Kappelhoff G, Frygner-Holm S, Russ S, Bullinger M, Quitmann J
J PEDIATR NURS. 2018;44:E98-E106.

Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia
Dellenmark-Blom M, Abrahamsson K, Quitmann J, Sommer R, Witt S, Dingemann J, Flieder S, Jönsson L, Gatzinsky V, Bullinger M, Ure B, Dingemann C, Chaplin J
DIS ESOPHAGUS. 2017;30(7):1-9.

Validation of the Italian Quality of Life in Short Stature Youth (QoLISSY) questionnaire
Quitmann J, Giammarco A, Maghnie M, Napoli F, Di Giovanni I, Carducci C, Mohn A, Bullinger M, Sommer R
J ENDOCRINOL INVEST. 2017;40(10):1077-1084.

An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia - development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)
Sommer R, Blömeke J, Dabs M, Witt S, Bullinger M, Quitmann J
DISABIL REHABIL. 2017;39(24):2499-2503.

Experiencing health-related quality of life in paediatric short stature - a cross-cultural analysis of statements from patients and parents
Sommer R, Bullinger M, Chaplin J, Do J, Power M, Pleil A, Quitmann J
CLIN PSYCHOL PSYCHOT. 2017;24(6):1370-1376.

Understanding, Assessing and Improving Health-Related Quality of Life of Young People with Achondroplasia- A Collaboration between a Patient Organization and Academic Medicine
Witt S, Rohenkohl A, Bullinger M, Sommer R, Kahrs S, Klingebiel K, Klingebiel R, Quitmann J
PEDIATR ENDOCRINOL REV. 2017;15(Suppl 1):109-118.

Development and Psychometric Evaluation of the MetabQoL 1.0: A Quality of Life Questionnaire for Paediatric Patients with Intoxication-Type Inborn Errors of Metabolism
Zeltner N, Baumgartner M, Bondarenko A, Ensenauer R, Karall D, Kölker S, Mühlhausen C, Scholl-Bürgi S, Thimm E, Quitmann J, Burgard P, Landolt M, Huemer M
JIMD reports. 2017.

Living with Intoxication-Type Inborn Errors of Metabolism: A Qualitative Analysis of Interviews with Paediatric Patients and Their Parents
Zeltner N, Landolt M, Baumgartner M, Lageder S, Quitmann J, Sommer R, Karall D, Mühlhausen C, Schlune A, Scholl-Bürgi S, Huemer M
JIMD reports. 2017;31:1-9.

Coping strategies used by children and adolescents born with esophageal atresia - a focus group study obtaining the child and parent perspective
Dellenmark-Blom M, Chaplin J, Jönsson L, Gatzinsky V, Quitmann J, Abrahamsson K
CHILD CARE HLTH DEV. 2016;42(5):759-67.

Stunted Growth. Proceedings of the 23rd Aschauer Soiree, Held at Aschauhof, Germany, November 7th 2015
Hermanussen M, Ipsen J, Mumm R, Assmann C, Quitmann J, Gomula A, Lehmann A, Jasch I, Tassenaar V, Bogin B, Satake T, Scheffler C, Núñez J, Godina E, Hardeland R, Boldsen J, El-Shabrawi M, Elhusseini M, Barbu C, Pop R, Söderhäll J, Merker A, Swanson J, Groth D
PEDIATR ENDOCRINOL REV. 2016;13(4):756-67.

Associations between Psychological Problems and Quality of Life in Pediatric Short Stature from Patients' and Parents' Perspectives
Quitmann J, Bullinger M, Sommer R, Rohenkohl A, Bernadino Da Silva N
PLOS ONE. 2016;11(4):e0153953.

Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: do family and social relationships matter?
Quitmann J, Rohenkohl A, Sommer R, Bullinger M, Silva N
HEALTH QUAL LIFE OUT. 2016;14:150.

A brief version of the Quality of Life in Short Stature Youth Questionnaire - the QoLISSY-Brief
Rohenkohl A, Bullinger M, Pleil A, Kriston L, Quitmann J
CHILD INDIC RES. 2016;9:971-984.

Evaluation eines selbsthilfegestützten psychosozialen Interventionsangebotes für Kinder und Jugendliche mit disproportionalem Kleinwuchs
Rohenkohl A, Sommer R, Kahrs S, Bullinger M, Klingebiel K, Quitmann J
KLIN PADIATR. 2016;228(1):17-23.

Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) Questionnaire in the Netherlands
Rohenkohl A, Stahlmann S, Kamp G, Bullinger M, Quitmann J
EUR J PEDIATR. 2016;175(3):347-54.

Talking about Height and Quality of Life: A Content - Analysis of Focus Group Discussions with Short - Statured Children and Their Parents in the US
Sommer R, Bullinger M, Pleil A, Mauras N, Ross J, Newfield R, Fox J, Quitmann J
Open J Endocr Metab Dis. 2016;6(11):229-241.

Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States
Bullinger M, Sommer R, Pleil A, Mauras N, Ross J, Newfield R, Silverman L, Rohenkohl A, Fox J, Quitmann J
HEALTH QUAL LIFE OUT. 2015;13:43.

Coping Strategies of Children and Adolescents with Clinically Diagnosed Short Stature
Quitmann J, Rohenkohl A, Specht A, Petersen-Ewert C, Schillmöller Z, Bullinger-Naber M
J CHILD FAM STUD. 2015;24(3):703-714.

Leben mit Achondroplasie: Wie beurteilen junge Menschen mit disproportioniertem Kleinwuchs ihre Lebensqualität und mit welchen Faktoren ist sie assoziiert?
Rohenkohl A, Sommer R, Bestges S, Kahrs S, Klingebiel K, Bullinger M, Quitmann J
Z KINDER JUG-PSYCH. 2015;43(6):433–441.

Linking a short-stature specific health-related quality of life measure (QoLISSY) to the International Classification of Functioning - Children and Youth (ICF-CY)
Sommer R, Bullinger-Naber M, Rohenkohl A, Quitmann J, Brütt A
DISABIL REHABIL. 2015;37(5):439-446.

Understanding the impact of statural height on health-related quality of life in German adolescents: a population-based analysis
Sommer R, Daubmann A, Quitmann J, Ravens-Sieberer U, Bullinger-Naber M
EUR J PEDIATR. 2015;174(7):875-882.

Quality of life as patient-reported outcomes: principles of assessment
Bullinger-Naber M, Quitmann J
DIALOGUES CLIN NEURO. 2014;16(2):137-45.

Cross-cultural equivalence of the patient- and parent-reported quality of life in short stature youth (QoLISSY) questionnaire
Bullinger-Naber M, Quitmann J, Silva N, Rohenkohl A, Chaplin J, Mimoun E, DeBusk K, Feigerlova E, Herdman M, Wollmann H, Sanz D, Pleil A, Power M
HORM RES PAEDIAT. 2014;82(1):18-30.

Die Lebensqualität junger Erwachsener nach einer Wachstumshormonbehandlung im Kindesalter
Quitmann J, Rohenkohl A, Kammerer U, Schöfl C, Bullinger-Naber M, Dörr H
DEUT MED WOCHENSCHR. 2014;139(46):2335-8.

Wie erleben betroffene Kinder und Jugendliche ihren Kleinwuchs, und wie ist die Sicht ihrer Eltern?
Quitmann J, Rohenkohl A, Sommer R, Petzold S, Bullinger-Naber M
PRAX KINDERPSYCHOL K. 2014;63(8):635-648.

Lebensqualität junger Menschen mit Achondroplasie: Qualitativer Vergleich der Perspektiven Betroffener und Eltern
Quitmann J, Witt S, Rohenkohl A, Bullinger M, Sommer R, Klingebiel R, Klingebiel K, Bergs-Winkels D
MONATSSCHR KINDERH. 2014;162(5):428-434.

Insightfulness and later infant attachment in clinically depressed and nonclinical mothers
Ramsauer B, Lotzin A, Quitmann J, Becker-Stoll F, Tharner A, Romer G
INFANT MENT HEALTH J. 2014;35(3):210-219.

Erfassung der gesundheitsbezogenen Lebensqualität von kleinwüchsigen Kindern und Jugendlichen. Psychometrische Analyse des deutschen QoLISSY Fragebogens
Rohenkohl A, Bullinger-Naber M, Doerr H, Jakisch B, Noeker M, Partsch C, Stahnke N, Rolf P, Wüsthof A, Quitmann J
Z GESUNDHEITSPSYCHOL. 2014;22(1):21-30.

Lebensqualität bei Kindern, Jugendlichen und jungen Erwachsenen mit Achondroplasie
Rohenkohl A, Bullinger-Naber M, Quitmann J
ORTHOPADE. 2014.

Validation of the Flemish version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire
Rohenkohl A, De Schepper J, Vanderfaeillie J, Fricke K, Hendrickx S, Lagrou K, Bullinger-Naber M, Quitmann J
ACTA CLIN BELG. 2014;69(3):177-182.

Lebensqualität chronisch kranker Jugendlicher
Bullinger-Naber M, Klasen F, Wille N, Brütt A, Rohenkohl A, Quitmann J, Ravens-Sieberer U
2013. Medizinische Rehabilitation von Jugendlichen. Petermann F (eds.). 2. ed. Regensburg: S. Roderer Verlag, 117-133.

Quality of Life in Short Stature Youth – The QoLISSY Questionnaire User’s Manual
Bullinger-Naber M, Quitmann J, Chaplin J, Herdman M, Mimoun E, Power M
2013. Quality of Life in Short Stature Youth – The QoLISSY Questionnaire User’s Manual. The European QoLISSY Group (eds.). 1. ed. Pabst Publisher, 1-144.

Assessing the quality of life of health-referred children and adolescents with short stature: development and psychometric testing of the QoLISSY instrument
Bullinger-Naber M, Quitmann J, Power M, Herdman M, Mimoun E, DeBusk K, Feigerlova E, Lunde C, Dellenmark-Blom M, Sanz D, Rohenkohl A, Pleil A, Wollmann H, Chaplin J
HEALTH QUAL LIFE OUT. 2013;11:76.

Parental perception of health-related quality of life in children and adolescents with short stature: literature review and introduction of the parent-reported QoLISSY instrument
Quitmann J, Rohenkohl A, Bullinger-Naber M, Chaplin J, Herdman M, Sanz D, Mimoun E, Feigerlova E, DeBusk K, Power M, Wollmann H, Pleil A
PEDIATR ENDOCRINOL REV. 2013;11(2):147-60.

Erfassung der gesundheitsbezogenen Lebensqualität von Kindern und Jugendlichen
Ravens-Sieberer U, Klasen F, Bichmann H, Otto C, Quitmann J, Bullinger-Naber M
GESUNDHEITSWESEN. 2013;75(10):667-78.

HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments
Silva N, Bullinger-Naber M, Quitmann J, Ravens-Sieberer U, Rohenkohl A
EXPERT REV PHARM OUT. 2013;13(6):817-27.

Gesundheitsbezogene Lebensqualität und psychische Gesundheit von kleinwüchsigen Kindern und Jugendlichen
Quitman J, Behncke J, Dörr H, Rolf P, Wüsthof A, Stahnke N, Jakisch B, Partsch C, Nöker M, Kuhnle-Krahl U, Rohenkohl A, Bullinger M
Zeitschrift für Medizinische Psychologie. 2012;31(3):132-139.

The Capacity to See Things from the Child's Point of View-Assessing Insightfulness in Mothers with and without a Diagnosis of Depression.
Quitman J, Kriston L, Romer G, Ramsauer B
CLIN PSYCHOL PSYCHOT. 2012;19(6):508-517.

Insightfulness Assessment - Erfassung des reflexiven Empathievermögens von Eltern
Quitman J, Romer G, Ramsauer B
PSYCHOTHERAPEUT. 2010;55:291-298.

Reflexives Empathievermögen von Müttern mit postpartalen Depressionen
Quitman J, Romer G, Ramsauer B
PSYCHOTHERAPEUT. 2010;1-5.

Letzte Aktualisierung aus dem FIS: 30.10.2024 - 03:11 Uhr