An International Collaborative Initiative to Establish a Quality-of-Life Questionnaire for Children and Adolescents with Repair of Esophageal Atresia in 14 Countries

CHILDREN-BASEL. 2024;11(3):.

A comprehensive systematic review of health-related quality of life measures in short stature paediatric patients
Adedeji A, Witt S, Innig F, Quitmann J
ENDOCRINE. 2024;86(2):478-504.

Development and Psychometric Evaluation of the IDMUQ: A Short Measure to Assess Increased Digital Media Use in Preschool Children
Wartberg L, Schmidt H, Menrath I, Witt S, Pawils S
SOC SCI-BASEL. 2024;13(9):472.

Growth hormone treatment in children with short stature: impact of the diagnosis on parents
Witt S, Bloemeke J, Bullinger M, Dörr H, Silva N, Quitmann J
J PEDIATR ENDOCR MET. 2024;37(4):326-335.

DySMA - an Instrument to Monitor Swallowing Function in Children with Spinal Muscular Atrophy ages 0 to 24 Months: Development, Consensus, and Pilot Testing
Zang J, Witt S, Johannsen J, Weiss D, Denecke J, Dumitrascu C, Nießen A, Quitmann J, Pflug C, Flügel T
J NEUROMUSCULAR DIS. 2024;11(2):473-483.

Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14 countries

FRONT PEDIATR. 2023;11:1253892.

Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): A prospective, controlled trial with a two-phase cohort design
Hebestreit H, Lapstich A, Brandstetter L, Krauth C, Deckert J, Haas K, Pfister L, Witt S, Schippers C, Dieris-Hirche J, Maisch T, Tüscher O, Bârlescu L, Berger A, Berneburg M, Britz V, Deibele A, Graeßner H, Gündel H, Heuft G, Lücke T, Mundlos C, Quitmann J, Rutsch F, Schubert K, Schulz J, Schweiger S, Zeidler C, Zeltner L, de Zwaan M
ECLINICALMEDICINE. 2023;65:.

Parent Perceptions of a Pretend Play Intervention for Their Children With Cancer
Höglund A, Witt S, Quitmann J, Frygner-Holm S
J NURS RES. 2023;31(1):e253.

Increased Digital Media Use in Preschool Children: Exploring the Links with Parental Stress and Their Problematic Media Use
Kattein E, Schmidt H, Witt S, Jörren H, Menrath I, Rumpf H, Wartberg L, Pawils S
CHILDREN-BASEL. 2023;10(12):.

Health-Related Quality of Life, Stress, Caregiving Burden and Special Needs of Parents Caring for a Short-Statured Child—Review and Recommendations for Future Research
Lackner L, Quitmann J, Kristensen K, Witt S
INT J ENV RES PUB HE. 2023;20(16):.

Caregiving burden and special needs of parents in the care of their short-statured children - a qualitative approach
Lackner L, Quitmann J, Witt S
FRONT ENDOCRINOL. 2023;14:1093983.

Lebensqualität von kleinwüchsigen Kindern und Jugendlichen und Wachstumshormontherapie
Quitmann J, Binder G, Witt S, Bullinger M, Blömeke J, Fricke-Otto S, Hauffa B, Kahrs S, Partsch C, Rohenkohl A, Dörr H
MONATSSCHR KINDERH. 2023 [Epub ahead of print].

Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs
Rautmann L, Witt S, Theiding C, Odenwald B, Nennstiel-Ratzel U, Dörr H, Quitmann J
INT J ENV RES PUB HE. 2023;20(5):.

Herausforderungen beim Übergang in die Elternrolle. Begleitung von werdenden Eltern mit dem Elternkurs "Sicherer Hafen"
Witt S, Brandi D, Kristensen K, Kollmeyer M, Quitmann J
Frühe Kindheit. 2023;66-71.

Bewegungsorientierte Förderung von Lebensqualität in der Kindertagesstätte
Witt S, Fiedler M, Madsen L, Quitmann J
Frühe Kindheit. 2023;2023(04):36-43.

Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung – erste Erkenntnisse aus der ZSE-DUO Studie
Witt S, Kristensen K, Blömeke J, Hebestreit H, Wocker M, Pfister L, Bullinger M, Tüscher O, Deckert J, Graessner H, Lapstich A, Zwaan M, Mundlos C, Quitmann J
PSYCHOTHER PSYCH MED. 2023;73(1):9-15.

Health-related quality of life and patient-reported outcome measurements in patients with cystinosis
Witt S, Kristensen K, Hohenfellner K, Quitmann J
JIMD reports. 2023;64(2):199-211.

Maßnahmen für einen optimalen Zugang von Kindern mit seltenen Erkrankungen und ihrer Familien zur psychosozialen Versorgung
Witt S, Kristensen K, Wiegand-Grefe S, Quitmann J
INNERE MED. 2023;64(5):494-499.

Effects of a Pretend Play Intervention on Health-Related Quality of Life in Children With Cancer: A Swedish-German Study
Witt S, Quitmann J, Höglund A, Russ S, Kaman A, Escherich G, Frygner-Holm S
J PEDIAT HEMAT ONC N. 2023;40(3):158-169.

Living with a rare disease - experiences and needs in pediatric patients and their parents
Witt S, Schuett K, Wiegand-Grefe S, Boettcher J, Quitmann J
ORPHANET J RARE DIS. 2023;18(1):242.

Factors of family impact in a Swedish-German cohort of children born with esophageal atresia
Dellenmark-Blom M, Abrahamsson K, Dingemann J, Witt S, Dingemann C, Jönsson L, Gatzinsky V, Bullinger M, Ure B, Chaplin J, Quitmann J
ORPHANET J RARE DIS. 2022;17(1):.

Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism - A Scoping Review
Kristensen K, Quitmann J, Witt S
FRONT ENDOCRINOL. 2021;12:.

Patient-Reported Outcomes-The Value of Observational Assessments
Witt S, Bloemeke J, Bullinger M, Dingemann J, Dellenmark-Blom M, Quitmann J
EUR J PEDIATR SURG. 2021;31(5):454-455.

Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study
Witt S, Dellenmark-Blom M, Kuckuck S, Dingemann J, Abrahamsson K, Dingemann C, Chaplin J, Ure B, Bullinger M, Gatzinsky V, Jönsson L, Quitmann J
ORPHANET J RARE DIS. 2021;16(1):120.

Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal Atresia
Witt S, Dingemann J, Dellenmark-Blom M, Quitmann J
FRONT PEDIATR. 2021;9:.

Lebensqualität und psychische Gesundheit von Kindern mit Adrenogenitalem Syndrom
Witt S, Heiden J, Quitmann J
Gynäkologische Praxis. 2021;2021(47):472-484.

»Sicherer Hafen« – Modellprojekt zur Steigerung der Lebensqualität und Feinfühligkeit für werdende Eltern
Witt S, Kollmeyer M, Brandi D, Quitmann J
Päd Praxis. 2021;2021(95):332-343.

Lebensqualität und Geburtserleben von Müttern und ihren Partnern im Rahmen des Elternkurses »Sicherer Hafen Hamburg«
Witt S, Kristensen K, Brandi D, Kollmeyer M, Quitmann J
Gynäkologische Praxis. 2021;48(2):242-252.

Wann ist klein zu klein? Und was bedeutet das für die betroffenen Patientinnen/Patienten und ihre Angehörigen?
Witt S, Kristensen K, Quitmann J
GLANDULA. 2021;53(2/21):40-42.

Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany
Witt S, Kristensen K, Wiegand-Grefe S, Boettcher J, Bloemeke J, Wingartz C, Bullinger M, Quitmann J
ORPHANET J RARE DIS. 2021;16(1):.

Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric Surgeon
Bloemeke J, Witt S, Bullinger M, Dingemann J, Dellenmark-Blom M, Quitmann J
EUR J PEDIATR SURG. 2020;30(3):232-238.

Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study
Dellenmark-Blom M, Quitmann J, Dingemann J, Witt S, Ure B, Bullinger M, Jönsson L, Gatzinsky V, Dingemann C
EUR J PEDIATR SURG. 2020;30(1):96-103.

Health-Related Quality of Life and Psychosocial Morbidity in Anorectal Malformation and Hirschsprung's Disease
Feng X, Lacher M, Quitmann J, Witt S, Witvliet M, Mayer S
EUR J PEDIATR SURG. 2020;30(3):279-286.

Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations-A Scoping Review
Witt S, Blömeke J, Bullinger M, Dingemann J, Quitmann J
EUR J PEDIATR SURG. 2020;30(3):225-231.

Lebensqualität und psychische Gesundheit von Kindern mit Adrenogenitalem Syndrom
Witt S, Heiden J, Quitmann J
Päd Praxis. 2020;93(03):385-397.

„Sicherer Hafen“ – Elternkurs zur Steigerung der elterlichen Lebensqualität und Feinfühligkeit für werdende Eltern
Witt S, Kollmeyer M, Brandi D, Quitmann J
gyne. 2020;2020(06):13-21.

Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment
Bloemeke J, Silva N, Bullinger M, Witt S, Dörr H, Quitmann J
HEALTH QUAL LIFE OUT. 2019;17(1):49.

Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia
Bloemeke J, Sommer R, Witt S, Bullinger M, Nordon C, Badia F, González F, Leiva-Gea A, Delgado Rufino F, Mayoral-Cleries F, Romero-Sanchiz P, Clamagirand Saiz V, Nogueira-Arjona R, Mohnike K, Quitmann J
QUAL LIFE RES. 2019;28(9):2553-2563.

Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)
Bloemeke J, Sommer R, Witt S, Dabs M, Badia F, Bullinger M, Quitmann J
DISABIL REHABIL. 2019;41(15):1815-1825.

Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish Cohort
Flieder S, Dellenmark-Blom M, Witt S, Dingemann C, Quitmann J, Jönsson L, Gatzinsky V, Chaplin J, Dammeier B, Bullinger M, Ure B, Abrahamsson K, Dingemann J
EUR J PEDIATR SURG. 2019;29(1):75-84.

First-year predictors of health-related quality of life changes in short-statured children treated with human growth hormone
Quitmann J, Bloemeke J, Dörr H, Bullinger M, Witt S, Silva N
J ENDOCRINOL INVEST. 2019;42(9):1067-1076.

Quality of Life of Short-Statured Children Born Small for Gestational Age or Idiopathic Growth Hormone Deficiency Within 1 Year of Growth Hormone Treatment
Quitmann J, Bloemeke J, Silva N, Bullinger M, Witt S, Akkurt I, Dunstheimer D, Vogel C, Böttcher V, Kuhnle Krahl U, Bettendorf M, Schönau E, Fricke-Otto S, Keller A, Mohnike K, Dörr H
FRONT PEDIATR. 2019;7:164.

Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study
Witt S, Bloemeke J, Bullinger M, Dingemann J, Dellenmark-Blom M, Quitmann J
BMC PEDIATR. 2019;19(1):330.

Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study
Witt S, Dellenmark-Blom M, Flieder S, Dingemann J, Abrahamsson K, Jönsson L, Gatzinsky V, Chaplin J, Ure B, Dingemann C, Bullinger M, Sommer R, Quitmann J
CHILD CARE HLTH DEV. 2019;45(1):79-88.

Quality of life of children with achondroplasia and their parents - a German cross-sectional study
Witt S, Kolb B, Bloemeke J, Mohnike K, Bullinger M, Quitmann J
ORPHANET J RARE DIS. 2019;14(1):194.

Eine Diagnose überbringen? Warum gerade ich?
Witt S, Quitmann J
Deut Hebammen Z. 2019;71(10):30-35.

The Esophageal-atresia-Quality-of-life questionnaires: feasibility, validity and reliability in Sweden and Germany.
Dellenmark-Blom M, Dingemann J, Witt S, Quitmann J, Jönsson L, Gatzinsky V, Chaplin J, Bullinger-Naber M, Flieder S, Ure B, Dingemann C, Abrahamsson K
J PEDIATR GASTR NUTR. 2018;67(4):469-477.

Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress
Silva N, Bullinger M, Sommer R, Rohenkohl A, Witt S, Quitmann J
CLIN PSYCHOL PSYCHOT. 2018;25(1):e107-e118.

Adrenogenitales Syndrom (AGS) mit 21-Hydroxylase-Defekt bei Kleinkindern: Erste Ergebnisse einer Pilotstudie zur psychosozialen Situation der Eltern
Witt S, Blömeke J, Dörr H, Quitmann J
Päd Praxis. 2018;90(1):29-37.

Emotionsregulation, psychische Auffälligkeiten und Lebensqualität von Kindern mit endokrinem Kleinwuchs
Witt S, Bullinger M, Quitmann J
Päd Praxis. 2018;90(2):200-210.

Quality of Life in Parents of Children Born with Esophageal Atresia
Witt S, Dellenmark-Blom M, Dingemann J, Dingemann C, Ure B, Gomez B, Bullinger-Naber M, Quitmann J
EUR J PEDIATR SURG. 2018 [Epub ahead of print].

Exploring the potential of a pretend play intervention in young patients with leukemia
Witt S, Escherich G, Rutkowski S, Kappelhoff G, Frygner-Holm S, Russ S, Bullinger M, Quitmann J
J PEDIATR NURS. 2018;44:E98-E106.

Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia
Dellenmark-Blom M, Abrahamsson K, Quitmann J, Sommer R, Witt S, Dingemann J, Flieder S, Jönsson L, Gatzinsky V, Bullinger M, Ure B, Dingemann C, Chaplin J
DIS ESOPHAGUS. 2017;30(7):1-9.

An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia - development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)
Sommer R, Blömeke J, Dabs M, Witt S, Bullinger M, Quitmann J
DISABIL REHABIL. 2017;39(24):2499-2503.

Understanding, Assessing and Improving Health-Related Quality of Life of Young People with Achondroplasia- A Collaboration between a Patient Organization and Academic Medicine
Witt S, Rohenkohl A, Bullinger M, Sommer R, Kahrs S, Klingebiel K, Klingebiel R, Quitmann J
PEDIATR ENDOCRINOL REV. 2017;15(Suppl 1):109-118.

Lebensqualität junger Menschen mit Achondroplasie: Qualitativer Vergleich der Perspektiven Betroffener und Eltern
Quitmann J, Witt S, Rohenkohl A, Bullinger M, Sommer R, Klingebiel R, Klingebiel K, Bergs-Winkels D
MONATSSCHR KINDERH. 2014;162(5):428-434.

Letzte Aktualisierung aus dem FIS: 20.12.2024 - 23:34 Uhr